Today I had a planned occasion.
Emily and I have been waiting months in eager anticipation of the release of the new "IT" movie, and today was the day we'd planned to visit our local Cineworld to watch it.
I know, I know - never plan anything because, invariably, it will have to be cancelled because of a flare of crohn's or my fibromyalgia - but plan it we did.
The day started out fine - usual pain but nothing out of the ordinary, until about 10am.
That's when the crohn's disease decided to have a go at me. It's as if it knows I have something planned. Three trips to the 'smallest room' in the space of an hour - it was going to be a bad day!
But today was different. Today I refused to let it win. I tried to think positively. Tried to focus on anything but my guts.
Normally when my crohn's flares I become extremely anxious. I pace around the house nervously waiting for the next onslaught. But today I tried to push it to the back of my mind and, in the main, I succeeded.
I made it to the movies and can highly recommend "IT" - it has the right mix of suspenseful terror and mild humour.
Being a horror movie I was concerned that any truly shocking moments would prove too much for my flaring crohn's disease to handle - but luckily my underpants survived unscathed!
Today is (so far) a good day. It is often the case with blogs I've written in the past, to focus only on the negative sides of the illness. Days where nothing can be done because of the pain, Crohn's flare days - spent on the toilet - recovery days when the pain is manageable but rest is vital. Nothing gets done. Everything is too much trouble.
Today is a good day. Not because I'm free of pain - that would be a 'miracle' day - or because my guts aren't in turmoil - they're actually quite bad ATM. No. today is a good day because I have achieved something I've been wanting to do for a few weeks but had neither the energy nor the inclination to attend to it.
Today is a good day because I feel unusually energetic IN SPITE of my pain and gut discomfort. I tend to over do it on these days - throwing myself into decorating a room or digging the garden - and that spoils me for the next three or four days! Not so today.
Today I simply arranged to have our central heating boiler repaired.
It's a little thing. It only took a couple of quick phone calls - one to the manufacturer for the part, one to an engineer to arrange fitting - and now that thing that's been hanging over me like a lead weight for several months is about to be rectified.
That thing which has seen me (and my family) trapesing upstairs to reset the boiler three or four times each time we tried to fill the sink to wash the pots, and standing by said boiler whilst filling the bath - which would mean upwards of thirty resets to get half a bath of hot water. That thing which has meant no heating since May (thank God for the summer!)
I finally got round to sorting that thing. That's a good day.
Now on to the next thing - I have a looong list of 'things' just waiting for me to feel energetic enough to do!!!
I'm Gary. I am fifty one years of age for the next month and a half. I'm married to the beautiful Lesley and have been for the past twenty four years. Together we have one child - our gorgeous Daughter, Emily, who is fourteen.
Ours is a relatively happy, normal life. Lesley and I both work, part time, in retail. Emily is a student. We share a two bedroomed semi detached house in Middlesbrough, North Yorkshire, UK. We have three cats - two moody she-cats and a frustrated tom!
We are all disabled in some way.
Lesley suffers with M.E / Chronic Fatigue Syndrome. Emily has O.C.D (Obsessive Compulsive Disorder) around germs, and I have Fibromyalgia and Crohn's Disease.
Needless to say, our ailments command a great deal of our time and impact our lives in some spectacularly alarming ways - on a daily basis! But we both work - albeit part time. Emily has to be tutored at home.
This blog is intended to be a record of how my ailments affect and impact my life, but I can't write about my life with fibromyalgia without referencing the impact it also has on my family and their ailments. What a bunch we are! We are a family though, and family supports each other when times get difficult - as they often do - and, in the main, we are happy with our lot. We share a wicked and juvenile sense of humour, Emily and I love to watch comedy shows on TV, and we all love cosy nights in!
That's as much as I can muster for tonight. I'll write more tomorrow....
I've had fibromyalgia for most of my life - diagnosed in 2003 - developed crohn's disease in 2007. I operate a website for men affected by fibromyalgia: www.fibromen.org - pay us a visit to learn more.